Life with MS & EDS

January 16, 2009

Music to the Rescue

Filed under: Uncategorized — by mseds @ 2:07 pm
Tags: , , , ,

The past couple of months I’ve been almost constantly tired.  I generally get 7 – 8 hours of sleep every night (usually closer to 8).  That seems reasonable.  I can’t figure out a way to get to bed much sooner than 10:15 each night and I get up every morning at 6:20.  I try to sleep in on weekends, but it doesn’t work.  I’m up by 7:00 anyway.  The slightest noise wakes me up.

It occurred to me yesterday that I’ve been eating during the day to stay awake.  Not good.  Coffee isn’t an option for me.  One small cup of regular coffee sends my low blood pressure up at least 30 points (I have proof thanks to a Starbucks screw-up between doctor’s visits.)  Apparently this isn’t uncommon with EDS and the cardiologist said to avoid caffeine.  Thankfully he okayed my decaf coffee addiction.

Anyway, I’ve probably put on about 10 pounds in the past 4 months.  The weight gain has to stop because it’s probably only making me more tired.  So, today I’m trying something new – listening to music.  Our iPod needed to be restored and is currently empty, so I found our stash of CDs.  Thank you REM, Barenaked Ladies, John Mayer, Indigo Girls, and Simon and Garfunkel for getting me through the day without constantly eating.  It’s mid-afternoon and I’m still tired, but this seems to be working.  I’ve not had a snack yet today.



  1. Sorry, I wrote you before reading…
    Had to comment on this one. I too eat to stay awake. I always thought that was my “ugly” little secret. 🙂 Like you, I have to try to find somehing else to do. Usually, the refrigerator wins, but I try!
    I also have put on alot of weight. Mostly due to that and lack of movement. Somethings gotta give!

    Comment by shell — May 21, 2009 @ 4:14 am

  2. It’s rough, isn’t it?!? The fridge does win out too often. Now that I’m doing Weight Watchers again, I’m making myself write it all down and I find that I’m at least picking better things to eat while trying to stay awake. It’s motivating to see the scale going down instead of up, so I suppose I’m finally doing something right. Lack of movement is a big problem for me. I love teleworking, but not having to commute to an office has it’s down side!

    Let me know if you find a better way to stay awake!

    Comment by mseds — June 3, 2009 @ 9:58 pm

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