Life with MS & EDS

March 13, 2009

Sesame Place Challenge

Filed under: Uncategorized — by mseds @ 7:24 am
Tags: , , ,

All year I look forward to the last Sunday in April.  This is the day that the Variety Club teams up with Sesame Place to open the park for free for kids with disabilities.  The day before they do the same thing for kids with Autism.  It’s called Variety’s Sesame Place Challenge.  It is such a great event!  We went to it two years ago for the first time.  That was the first summer Little Sister was walking.  It was wonderful to be in a place with other people who were going through similar experiences, although certainly to varying degrees.  I can’t wait to go again this year.  Little Sister has made a lot of progress since the first time we went.  I hope that she’ll try more than just Elmo’s Flyin’ Fish (very much like Dumbo) this year.  Rides are a challenge for her.  Being in loud, crowded places is also a challenge for her.  It’s nice to know that we’ll have the opportunity to be in an environment where I won’t feel the need to explain anything to anyone.  The other people there will understand why I get so emotional and excited about seeing an almost 5 year old get on a ride for the first time that usually brings on this kind of response from parents of a a 2 or 3 year old.  Most importantly, Little Sister will have the chance to feel proud.  They treat the kids great and they even get a nice surprise at the end to recognize their accomplishments.  Big Sister gets to enjoy the day, too.

I just registered us for this year’s event.  The last time we did this I had to register via mail, so it’s nice that it’s online now.  Even neater was that “Ehlers-Danlos Syndrome” was actually on their drop-down list of diagnoses!

Thank you Variety Club and Sesame Place for doing this!

If you are in the Philly area and have a child with developmental delays or disabilities, definitely check out this event!



  1. Hi, could you tell me where you registered online? My youngest daughter has BCH and I received the forms in the mail but there is no info on the website. Thanks!

    Comment by Myla — March 31, 2009 @ 5:49 pm

  2. This link I used to register is:

    Hope this works!


    Comment by mseds — March 31, 2009 @ 6:27 pm

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