Life with MS & EDS

October 2, 2009


Filed under: Uncategorized — by mseds @ 9:32 am
Tags: , , , ,

Today I’m more tired than I have been in a long time and I’m trying to figure out why.  I had a particularly busy few weeks (hence my lack of posts!), but this week was pretty calm.

Could it be that I’m finally exercising?  I just joined a gym and actually got there twice this week!  I figured my plan to lose weight by eating better wasn’t working, so it was time to try something else.  I found a place nearby that has an awesome family exercise room with a moon bounce, climbing area, etc. for the kids and bikes, treadmills, stairmasters, etc. along the outer edge for the adults.  The girls LOVE it and it gets us working out.  I even got to the pool with Big Sister one evening.  She’s recently overcome her fear of water and I love doing water aerobics.  I learned quickly that I can’t do land and water exercise on the same day.  Our first time there, I over did it.  I rode on the bike for about 35 min. and walked on the treadmill for about 15.  That afternoon we went to the pool and I did a couple of laps and some water walking.  That night my hips were in such pain!!!  Splitting things up this week worked much better and I didn’t have any pain.  But, I do think my body may be demanding more rest to make up for all of this!

How about lack of Vitamin D?  I started taking supplements a month ago.  I take them when I do my Copaxone shot each evening, but sometimes forget.  I realized that I’m more tired the following day if I forget the supplement.  But that could just be that I was tired enough to forget to take it in the first place, so that may or may not be the cause.

Maybe it’s my diet?  I’ve eaten a ton more salt this week than I usually do.  I fasted on Monday for Yom Kippur and hosted the break-the-fast meal here.  We ended up with a lot of leftovers, consisting of mostly high-sodium foods like lox, smoked salmon, whitefish salad, etc.  Since I couldn’t let such great food go to waste, I’ve been eating it (see why I needed to join the gym?!)  I know there’s been a lot written about the importance of an anti-inflammatory diet and I’m sure I’ve been doing the opposite this week.  It’s time to get back to VitaMuffins for my morning snack instead of lox and bagel!

Perhaps it’s just the season?  Every October my optic neuritis gets worse.  I love fall and cooler temperatures, but my MS symptoms increase.  I’ve not been able to find any information on the seasonal nature of MS, but this has been happening every fall since 2001!  It seems strange to me that fall would be the trigger and not summer.  I’ve been complaining about my eyes the past couple of days.  This morning I realized that my vision in my right eye is a bit foggier again.  My next brain and spine MRI are in a couple of weeks and I’m so curious to see what it shows.

Maybe I’m just doing too much and need more sleep!  While I should probably stay home and rest this weekend, we’re heading down the shore for the MS Bike 150.  My husband is volunteering and the girls and I will be there to cheer on and thank the awesome riders!


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