Life with MS & EDS

November 20, 2009

It’s my 1st MS-iversary

Filed under: Uncategorized — by mseds @ 6:28 am
Tags: , ,

Today marks one year since my eye doctor called at 7:30 a.m. the day after my brain MRI to tell me I had MS.  I’ve been thinking about this a lot this past week and took a moment to reflect on all of the things I learned this year in addition to learning tons about Multiple Sclerosis.  In no particular order:

I learned that I am stronger than I thought I was!

I learned that I could get used to doing shots, although thank goodness for the AutoJect!

I learned that I could bond with people I’ve never even met and that they can offer an important source of support.

I learned that my analysis skills come in handy in my personal life, too.

I learned that there’s a whole other reason to hate my thighs!

I learned that I like my specialist better than my general neurologist and that having someone who knows a ton about MS makes a huge difference.

I learned that there are others like me out there who have both Ehlers-Danlos Syndrome and Multiple Sclerosis.

I learned the importance of ensuring docs also check the spine!

I learned that Copaxone doesn’t work for me and that sometimes it is necessary to change drugs.

I learned to time the arrival of drug shipments with something you really want to get.

I learned that one can eat an amazing amount of food while on steroids!

I learned that friends will gladly walk a few miles with you and help you raise money to battle your disease and that this provides a great excuse for a girls’ weekend!

I learned that it’s the little things in life that warm my heart.

I’m constantly reminded that I have fantastic friends and family.

Thank you all for being there for me!  It’s been a crazy year with a decent number of ups and downs and I truly appreciate you all.


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