Life with MS & EDS

March 8, 2010

How to Spa with MS and EDS

Last week I was on a fantastic business trip in AZ.  Since I telework, it’s great to get to see my team, but it’s even nicer in a beautiful surrounding.  The resort and the views were amazing!

While I was there, I treated myself to a spa appointment.  Their list of services was so fantastic that it took me about 3 weeks to decide what to do.  I couldn’t fit in more than an hour, so that limited things.  I also knew I couldn’t take advantage of their hot tub or steam room, not without risking an MS flare-up (heat like that messes up my optic neuritis.)  I used to love to have facials, but rosacea has made those tricky and I wasn’t up for chancing it while on a business trip.  That narrowed the list down to massages and wraps.

I decided on a hot stone massage.  In general, it was quite nice.  I tend to get cold easily, so the hot stones were nice.  There’s something comforting about laying on a row of warm stones and having more piled on top of you.

At the start of the treatment I told the lady that I had MS, but didn’t mention the EDS.  I usually don’t unless someone really needs to know because it takes too long to explain.  Given that my symptoms are pretty low, other than the heat with MS, I hadn’t really thought of how a spa appointment would affect either the MS or the EDS.  I soon figured it out.  The problem was with the use of the stones during the massage.  My left shoulder blade area is bruised.  I guess anything even slightly deep tissue is a bad idea!!!

Lesson learned.  I think I’ll try a wrap next time instead.



  1. So bummed!!! Wraps are good, so I guess it’s a matter of finding the right treatment. I’ll be happy to road test a few with you. 🙂

    Comment by posey — March 8, 2010 @ 7:19 am

  2. Ah, wouldn’t it be awesome to have enough time and money to research the very best spa treatment for people with MS and EDS? I’ll add this to my list of things to do when I win the lottery!!

    Comment by mseds — March 8, 2010 @ 7:54 am

  3. Love comment 2 – now that would be research indeed!

    Poor you – better luck next time.

    Comment by achelois — March 8, 2010 @ 8:50 am

  4. My husband and I often joke about what we’d do with lottery winnings. Spa research is now toward the top of the list! That would be such a fun contribution to the MS and EDS blogging worlds.

    Comment by mseds — March 8, 2010 @ 9:34 am

  5. Hello, I have never read a blog before but got your info off another website, I am searching for answers my mom dies of ms about 6 months ago and I have eds, I would like to get more information on the correlation, thank you for any help.

    Comment by Adrienne Perez — May 7, 2014 @ 10:15 am

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