Life with MS & EDS

April 14, 2010

Blocked Veins!

Filed under: Uncategorized — by mseds @ 6:36 pm
Tags: , ,

Bilateral interior jugular vein blockage!!  YEAH!!!  It was such a neat experience!  The woman who did the Doppler Ultrasound was training another technician on how to do it so that they could see more patients.  They have done this for years for other reasons, but I’m one of their first MS patients.  Everyone there is really excited about this.

While I was laying down, the left side had blockages.  Both sides were blocked when sitting up.  There was also noticeable reflux.  They could hear it on their Doppler.  I thought that was really neat.

I got a CD with the images and will try to post something soon.

I’m scheduled for angioplasty in a week and a half!  While I’m sedated, but alert, they’ll thread a catheter in through the groin area, insert dye, and check all of my major veins.  As they find a blockage, they’ll open it up with angioplasty.  They expect it to take about two hours.  After that, I’ll have to lay with my leg straight out for 4 hours.  They’ll do another ultrasound before I leave to see what things look like.

After that I’ll come back at one month, three months, six months, and one year.  They’ll redo the ultrasound and the MS Quality of Life Survey each time to see how things are going.the way

By the way, my MS QOL survey results before angioplasty are:

Physical Health Composite: 74%

Mental Health Composite: 91.7%

I have the MS Walk a few days after the procedure.  They think that I’ll have an even easier time walking just after surgery than if I wait until afterward.  That’s pretty encouraging!  I can’t wait to add my CCSVI info to the back of my MS Walk shirt!

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7 Comments »

  1. So happy!! Can’t wait to see how you do.

    Comment by posey — April 14, 2010 @ 7:54 pm

  2. Where are you going for the testament?
    I hope it works out great for you.

    Comment by Clay — April 14, 2010 @ 8:11 pm

  3. Where did you have your testing done, I’m having a hard tim findng any one local to even look at me because I have MS.

    Bridget

    Comment by Bridget — April 14, 2010 @ 8:45 pm

  4. This is so exciting! I can’t wait to hear more on how it is going! I mentioned it briefly to my neurologist at my last visit, and he looked at me like I had two heads, then actually scoffed. So much for getting help through him.

    Comment by Erin — April 15, 2010 @ 9:46 am

  5. Hey Erin! I know what you mean. While they didn’t scoff, they did look at me like I had two heads. They just couldn’t understand why I’d want to even know what my veins looked like, let alone try a new procedure to open them. They just don’t get it. Doctors have been opening veins for years! The idea of stents worries me and I wouldn’t consider them, but why not try angioplasty and see if it helps? I hope more doctors get on board so that everyone who wants to try this has access to the procedure!

    Comment by mseds — April 19, 2010 @ 8:20 pm

  6. Hi Bridget! Just in case you didn’t see my other post, look around for an Interventional Radiologist. I got a lead on Dr. Bonn at Lankenau Hospital, which is just outside of Philly. He’s fantastic!

    Comment by mseds — April 19, 2010 @ 8:21 pm

  7. Hi Clay! Just in case you didn’t see my other post, look around for an Interventional Radiologist. I got a lead on Dr. Bonn at Lankenau Hospital, which is just outside of Philly. Good luck with your search!

    Comment by mseds — April 19, 2010 @ 8:22 pm


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