Life with MS & EDS

May 18, 2010


Filed under: Uncategorized — by mseds @ 7:23 pm
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I just realized it’s been a while since I last wrote.  Things have been pretty uneventful the past few weeks.  I did the MS Walk earlier this month and had a couple of other events that required a lot of energy.  I made it through them wonderfully, but then it takes at least three or four days for me to feel like I’ve recovered.  This past weekend I took Big Sister’s Brownie Troop on an overnight and got very little sleep.  I slept most of the next day and it’s taken until today for me to feel like I’m back to my normal level of fatigue.  I cannot tell you how much I am looking forward to the CCSVI procedure to unblock my veins.  I’m positive that it will have a huge impact on my quality of life.  I’m tired of constantly being unenergetic!

Not much else is going on.  I’ve been having more EDS problems than MS problems.  My DeQuervains is starting to act up again, so I’m being extra careful with my hands, especially my thumbs.  I feel like my writs are bending in weird ways.  I’ve also had a lot more ankle problems.  My ankles are collapsing more often when I’m walking.  My ankle gave out on the way into voting this morning and took my husband by surprise.  I got a “what was that?!”, to which I replied, “oh, just my ankle collapsing again.”  There’s got to be something I can do to make them stronger so that I don’t actually fall and injure myself one of these days.  When Little Sister was a baby we used to use Kinesio tape on her stomach and legs to increase her strength.  We still have a lot of the tape left and I think I’m going try to find out if I can use it on my ankles.  I’ll pass along anything I figure out and welcome advice anyone else has figured out about bendy ankles!

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