Life with MS & EDS

April 15, 2010

Look for an Interventional Radiologist

Filed under: Uncategorized — by mseds @ 6:15 am
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I was incredibly fortunate to have gotten the lead on a doctor via Facebook.  I hit a dead-end with every neurologist I asked about CCSVI.  I’m sure many of you are in the same boat.  I was on the crazy long list at Buffalo and just figured I’d have to wait it out.  Then I heard about Dr. Bonn in Wynnewood, PA.  That’s just outside of Philly and far closer to me than the 6+ hour drive to Buffalo!  I called last week and saw him this week.

I strongly encourage you to start looking for interventional radiologists near your home.  They are out there and are far more receptive to the idea of CCSVI.  They are also very capable of doing the surgery.  They have been doing this for years for other types of patients (e.g., dialysis.)  This is nothing new to them — just a new cause for blocked veins.  It’s quite awesome!

If you are interested in knowing more about someone’s experiences, check out Persistent in PA!  Thanks, Janet, for blazing the trail!

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