Life with MS & EDS

March 19, 2010

Sesame Place Challenge 2010

Filed under: Uncategorized — by mseds @ 9:14 am
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The Variety Club is doing the annual Sesame Place Challenge on April 25, 2010.  If you have a child with a disability, this is a fantastic event!  We go every year and really appreciate it.  I hope the weather is as nice as last year and that I won’t be on steroid treatment this time.

I just registered us for this year.  Sadly, my favorite part of the process is that “Ehlers-Danlos Syndrome” is actually on their drop-down list!  I don’t have to check “other” and then say what her problem is.

Thanks Variety Club and Sesame Place!

August 27, 2009

Another Sesame Place Day

Filed under: Uncategorized — by mseds @ 6:39 pm
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The Variety Club is sponsoring another day at Sesame Place for kids with special needs.  It will be held on Sunday, November 1st for The Count’s Halloween Extravaganza!  We’ve never been to this before and until today I had no idea that the Variety Club hosted this.  We usually steer clear of things like this because Little Sister is likely to be scared and overwhelmed, but knowing that the event is tailored for special needs kids makes me think there’s a chance of this working.  So, we just signed up. Hopefully this will go better than Disney!

If you or anyone you know has a special needs kid and are in the Philly area, check it out!  Sesame Place and Variety Club throw awesome events!  We take part in the Sesame Place Challenge each spring and are always so impressed.  It’s also great to be in the park where you know others around you are dealing with similar things and won’t give you strange looks like you may get elsewhere.

Registering is always kind of neat, too.  It’s the only thing I do where Ehlers-Danlos Syndrome is actually listed as a choice instead of using the “other” or write-in options!

April 26, 2009

Fun Day at the Sesame Place Challenge

Today was the Variety Club’s annual Sesame Place Challenge.  It was a great day!  I must admit I was leery this morning.  Things were off to a rough start.  Everyone was in a mood.  Big Sister was exhausted from a sleepover party last night.  I was still wiped out from Prednisone – Day Four.  Hubby was in a mood, probably just anticipating the stress of the day.  Little Sister was in the best mood of us all.  She actually didn’t fight us about getting dressed or leaving the house!

We got to Sesame Place a bit before the 10 a.m. start time.  The parking lot was pretty empty in comparison to the normal season there.  We got in pretty quickly, got a locker for our stuff, and headed off to the rides.  Little Sister enjoyed the Flyin’ Fish ride.  We took her on the Peek-a-Bug, but she didn’t like that one.  After doing those rides together, it was time for Big Sister to split off and do some more exciting things.  Little Sister and I went on the merry-go-round, which she loved, and then we say the Abby Cadabby Treasure Hunt show.  It’s the same version we saw 2 years ago, but she didn’t remember that.  The people nearby obviously did because they kept telling their kids what was going to happen next and gave away the story.  She grabbed my hand whenever she saw a character in costume, regardless of how distant they were, but she was okay with them performing several yards in front of her.  This gives me hope for our Disney trip this summer.  Her endurance today was also a good sign. 

After that we spent a small fortune on a so-so lunch before hitting the water rides.  Big Sister’s mood left a lot to be desired.  She wasn’t very rational today.  Hubby went off and did some of the water rides while the girls and I hit the Tidal Wave pool.  I was fortunate enough to snag a chair and was very happy to sit and cool down.  It’s just wrong to have a 90-degree day this time of year in the Philly area.  The girls enjoyed splashing around and Big Sister even went off on her own for a bit.  To wrap up the day we managed to talk the girls into doing the Lazy River.  That’s right up my alley! 

We fit a lot into our 5 hours there.  People were generally very nice and more understanding of other people’s kids than you’d usually see at places like this.  Most parents looked tired like we did, but you could tell they just loved watching their kids having fun.  Strangely, I think my favorite part was when we were leaving lunch.  We ate upstairs in one of their restaurants and on the walk down Little Sister held my hand and actually ALTERNATED feet going DOWN stairs!!!  She just started alternating her feet while climbing stairs on her own about a month ago.  This is such fantastic progress for her!  Definitely a major SmileStone. 

Thanks Variety Club!!

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